The tracheotomy tube is out. The feeding tube and IV tap (portacath) both go away next Tuesday (Sept. 1).
Food now includes: bacon, eggs, cantaloupe. burritos, pork chops, mashed potatoes, and more stuff.
I still need a lot of sleep and I'm not gaining weight. My metabolism is cranked. I'm getting an average of about 2,600 calories a day. I don't know what my body is doing with all the sleep and food. The only thing I can imagine is that my body has everything on overtime and double shifts fixing stuff that the chemo and radiation broke down.
My neck is not pretty or something anyone would want to see. The scar from the original surgery is big and ugly, but the sunburn effect from the radiation has my entire neck area rough, red, and obviously irritated. The scar reacted by turning pretty much dark and bright red.
I'm going to try for 6 hours a day at work for the next 2 weeks. The only problem I see is my sleep requirement, which is still in the 12-hour range.
I am thrilled with the progress I'm making. It seems I'm doing better than any of the doctors expected. My throat is still sore and swollen. Going into allergy season is a little tough. The combination of some allergy reactions with the condition of my throat causes some complications.
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You don't have to be pretty! Just being alive is good enough! If it isn't painful, you might dust some baby powder or talcum on your neck to reduce the redness. I'm sure it will lighten in time, but until then, a little powder might help. I'm, so glad you're doing so well!
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